According to Mirro UK, six year old Virsaviya "Bathsheba" Borun-Goncharoval was born with her heart and other
organs outside her chest cavity and has flown from Russia to the US for
medical care.
Virsaviya "Bathsheba" Borun-Goncharova suffers from thoraco-abdominal syndrome or Pantalogy of Cantrell and amazingly she is able to dance and even do the splits despite her condition.
According to photos posted online by her mother, her heart can be visibly seen beating with only a thin layer of skin to protect it.
The condition which occurs in less than 1 in a million births is so rare her mother Dari Borun has had to move her from Russia to the US in the hope she can have surgery.
Several hospitals around the world are said to have turned Ms Borun's request to operate on her daughter because of the difficulties and risks of surgery.
The pair recently traveled to Boston but the Children's Hospital could not operate because her aortic blood pressure was too high, she claims.
Now the family have moved to Hollywood in the hope that medications can bring her blood pressure down enough to operate.
"I like to draw Jesus, ponies and angels," said Virsaviya.
Mirror UK
According to photos posted online by her mother, her heart can be visibly seen beating with only a thin layer of skin to protect it.
The condition which occurs in less than 1 in a million births is so rare her mother Dari Borun has had to move her from Russia to the US in the hope she can have surgery.
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| Pretty Virsaviya was born with her heart beating outside her chest |
Several hospitals around the world are said to have turned Ms Borun's request to operate on her daughter because of the difficulties and risks of surgery.
The pair recently traveled to Boston but the Children's Hospital could not operate because her aortic blood pressure was too high, she claims.
Now the family have moved to Hollywood in the hope that medications can bring her blood pressure down enough to operate.
"I like to draw Jesus, ponies and angels," said Virsaviya.
Mirror UK
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